Bunny who?

Why? Who? What's this blog about? It's about MEEEE!

Being a Widow

My experience of dealing with grief as a widow

Astrocytoma

About Jane's brain tumour journey: Astrocytoma.co.uk
 

Welsh road sign used as Out of office notice.

31 October 2008




This sign is easily the funniest thing I have seen in a long time. JD & I laughed our heads off when we read the following story on the BBC website.

All official road signs in Wales are bilingual, so the local authority e-mailed its in-house translation service for the Welsh version of: "No entry for heavy goods vehicles. Residential site only".

The reply duly came back and officials set the wheels in motion to create the large sign in both languages.

Unfortunately, the e-mail response to Swansea council said in Welsh: "I am not in the office at the moment. Please send any work to be translated".

So that was what went up under the English version which barred lorries from a road near a supermarket.


The whole story is here.

If Wales is bilingual, why was the email out of office not in English and Welsh?
Keep Reading: "Welsh road sign used as Out of office notice."

Yodeling

For a reason I do not yet understand, I yodeled on the bus home from a rugby match last Sunday. That sounds weirder than it is but they were singing 'The Lonely Goat Herd' from The Sound of Music and it has a little yodel in it.

"High on a hill was a lonely goatherd
Lay ee odl lay ee odl lay hee hoo
Loud was the voice of the lonely goatherd
Lay ee odl lay ee odl-oo"


And when they got to that part, I yodeled it. Much to the enjoyment of the rest of the team. They made me yodel some more (I only knew one song, thank God).

I thought everyone could make sounds like that but apparently not. they have now mentioned they will do The Sound of Music at the Christmas panto, just so that I can yodel in it. I think not.

However, I have been looking for another song I could learn to yodel, just so I don't have to sing the same silly song all the time. And then I came across Margo Smith, the Queen of Country yodeling. My lord, she's good. And strangely addictive to listen to.




But wait, it gets better. They yodel in Korea too! In full Austrian costume.



I have a LOT of practice to do before I am that good at it.
Keep Reading: "Yodeling"

It is back...

23 October 2008



I realise I have not posted anything interesting here in..well....weeks (months?). Not that things have been really busy. Just that I haven't been bothered posting.

However, I suppose things have changed now and I might get back to some more regular posting here.

As you may remember, in February this year, JD and I were told that her brain tumour is active again. The specialist said there was an absolute minute change in the size of the tumour. Nothing to worry about and the scan would be repeated in 12 months time, no need to worry. Sure. Of course you worry; even when the doctor says you shouldn't.

Most people imagine a tumour as a well defined lump (See the picture on the right as random example) but Jane's tumour isn't like that. It is more like little bits of tumour tissue, growing in between healthy brain tissue in a small area of her brain. The healthy tissue gets irritated by the tumour tissue and it starts to swell up, putting pressure on the brain since there is no space in the skull for tissue to swell up. So on the MRI scan, you don't see a nice clear lump, but a vague grey area where there is tumour tissue in the brain (see the picture on the left as a random example). This makes it really hard to remove as you don't really know which bits are tumour and which bits are healthy tissue that is swollen. It all looks the same. When they originally removed the tumour, in 2005, they were unable to determine exactly what kind of tumour it was. They were also not able to remove all of it as the 'edges' were not very well defined.

In the months that followed February, JD kept having headaches. There were periods where she had them every day for weeks. In September JD had a migraine attack, something she had never had before. It was really scary as we had no idea what was going on. Vomiting, excruciating headaches for about 8 hours. Combined with her hearing problems that had recently surfaced, we decided that we would really like an MRI scan done earlier than February 2009. We went to her GP and luckily he agreed that she should be seen by a Neurosurgeon.

The Neuro bloke was really nice and ordered an emergency MRI scan for the next week. When the results came back, they were not really what we were hoping for. The tumour was indeed growing and active, more so than they anticipated back in February. JD was put on steroid tablets to reduce the swelling of healthy brain tissue around the tumour that was irritated by the presence of the tumour. This helped reduce the headaches.

The last MRI scan showed that the grey area on the picture had grown larger and that there was now also a second area that showed up grey. Does that mean the tumour is spreading? Or that there is simply more brain swelling going on? They can't tell from the MRI. So they wanted to do a PET scan and based on the outcome of that, do a biopsy to see if they can finally decide what kind of tumour it is. And then he said the words Chemotherapy and Radiation. Excuse me? Can you repeat that for me? Chemotherapy? Radiation? That is for people with CANCER! The doctor said there was no real need to treat the tumour but because JD is so young, he preferred to treat it now, before it might start to grow faster or even change in to a malignant tumour.

We left the hospital shellshocked. From having a migraine to being told your tumour is indeed growing and you might need Chemo and Radiation.... Geeeeez.

And so JD had her PET scan last week; she had another blazing migraine that same day so she was ill all the way to the hospital and back. Poor sweetie. A PET scan looks are brain function. The contrast fluid lights up differently depending on the activity in the brain. Hopefully that will enable them to see the difference in brain activity in tumour tissue and normal brain tissue. That way they might be able to get a clearer picture of where to take biopsy samples from.

It is wait and see what the results of the PET scan say.

It is a small difference in emotions but somehow I feel things have shifted for JD. From 'having a brain tumour' to 'living with a brain tumour'. If you have no symptoms, then the tumour might as well not be there. Now she has headaches and 'proper' symptoms, it just feels different.

Yegh. I am not liking it. I prefer to know exactly what tumour it is, what the prognosis for it is and how much this is going to affect the rest of her life. All this uncertainty is no fun. Very stressful!
Keep Reading: "It is back..."

Sunday morning

05 October 2008


Today i am playing rugby against my old team. I am always nervous on sunday mornings before matches. My stomach feels funny and sickly. So to calm myself i am reading a nice book in bed. Outside the rain is rattling against the windows and the sky is dark. Not a nice day to be out on the pitch. Oh and did i mention we joined a gym?
Keep Reading: "Sunday morning"