Bunny who?

Why? Who? What's this blog about? It's about MEEEE!

Being a Widow

My experience of dealing with grief as a widow

Astrocytoma

About Jane's brain tumour journey: Astrocytoma.co.uk
 

Invocal in the Park

22 September 2009

I think I am spending entirely too much time on Invocal. Things on my to-do list at the moment:

- Design new website
- Get website built & sort out hosting
- Organise photography session for new promo shots
- Sort out new promotional materials
- Get gigs booked
- Get more press coverage
- Update MySpace & Twitter with regular news
- Keep mailing list updated
- Organise a video shoot & manage creation of videos

Needless to say JD is getting a *little* bit frustrated with the amount of time I spend on Invocal. But on the other hand, she loves that I am doing something I enjoy immensely. And the music is nice: Acoustic, folk-ish, funny and from Northampton to boot :-)

This weekend, we went to The Racecourse in Northampton to take a few new photos. I took my camera along and then I shot a little bit of video. Since I don't have any decent video editing software, I used Windows Movie Maker (EVIL program!) to create a short film of a minute.

Invocal in the Park from Invocal on Vimeo.

This morning, Northampton acoustic group Invocal took to The Racecourse to have their picture taken. Things are never simple with that lot...

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Julie and Julia

16 September 2009


Just about to leave the cinema after watching Julie and Julia. What a wonderfully entertaining film. With nice food and harmless acting. I suppose it should make me want to cook but it made me want to blog.
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She is shrinking! (but not the tumour)

13 September 2009

Oh no! Someone come to my rescue. My wife is vanishing before my eyes! Since she has stopped taking steroids, there has been less and less of JD but in the past few days, things have really taken on a new degree of speed. Weight is now flying off. Yay. So much so that we went to H&M yesterday and bought a nice pair of jeans. After about 6 months in baggy trousers with elasticated waistbands, JD can wear a pair of jeans again and feel 'normal'. I am sooooo proud of her. She looks lovely and thin in the jeans. And it makes her feel better as well.

The irony in this is that she looks better and better and people are commenting on how good she looks and yet, she is in actual fact not getting better at all!

This week sees the second round of chemotherapy. Officially the course of Temozolomide is planned for 6 months, then a scan and then perhaps more chemotherapy. I asked the doctor what would happen if the scan shows the tumour has stopped growing after 6 months' of chemo. His answer was that JD would then continue to take the Temozolomide. So as long as the tumour does not grow further, she will keep doing monthly cycles. He said: I have patients who are doing really well and are already on their 38th cycle of chemotherapy.

When I think about the deeper implications of what he said there, I don't like that at all. So 3 years of monthly chemo and still alive is considered 'really well'.

Don't get me wrong, we are positive and will just continue to do the things we do as much as possible: play tennis, JD continues her PhD and stuff. But the fact that the tumour is not giving her any problems at all and yet it is apparently so dangerous that it requires the severely aggressive treatment is hard to take sometimes.
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Why not become an Invocal fan?

06 September 2009

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